I took a seminar once called “The Reading Brain.” It was a required part of my Orton Gillingham training. I remember being a bit concerned when the instructor handed out a two-page “Brain Word Bank” and I didn’t recognize 90% of the terms, but I was reassured when the first activity was coloring in different areas of the brain with florescent markers.
While initially intimidating, neuroscience soon captivated me. I was fascinated to discover the individual “jobs” of various brain parts, and how the parts work together to accomplish the complex task of reading. I was intrigued by MRI scans of the brains of children with and without dyslexia, taken while they were reading. The scans showed that the part of the brain that was supposed to “light up” during the reading process did not seem to fire for kids with dyslexia. Yet, in spite of this, children with dyslexia do learn to read. With the right intervention, other parts of the brain can be trained to perform the function of the part that is not performing efficiently.
This made me think of my college students when I assign cooperative group projects. I sometimes overhear them “collaborating.” Student 1: “Um, I am pretty sure that was YOUR job. Now, because you didn’t do what you were assigned to do, we’ve wasted valuable time and might even miss the deadline.” Student 2: “Was that my job? I thought you were in charge of that. I was kind of busy doing this other thing.” Student 2: “Well, its too late to make up for it now. And just so you know, Student 3 has had to work twice as hard to do her stuff AND yours in order to get this project finished.”
That is how I imagine the dyslexic brain; struggling with the collaborative process of deciphering text and finding that a member of the group is slacking off, causing the others to have to work twice as hard to make up for it. But in the end, the task is accomplished. Not as quickly, not as easily and not in the hoped-for way, but it is accomplished.
I have always found this knowledge of the brain reassuring, because it provides us with valuable information about how to teach reading to children with dyslexia. So I was excited to learn that, like children with dyslexia, children with Down syndrome share a set of learning characteristics that are rooted in the neuroscience of their brain development. These characteristics affect language and literacy growth in ways that will be very familiar to any parent or teacher who has ever taught a child with Ds to read. Here is my non-scientific look at a some of these characteristics and how they may come into play when children with Ds set about to conquer the written word:
Memory, information processing and motivation:
- Weak auditory working memory, i.e. difficulty holding information in short-term memory while performing other cognitive processes. For example, recalling the sound-symbol associations for letters while blending the sounds together to make a word or sounding out words while simultaneously thinking about their meaning.
- Relative strength in tasks requiring “implicit” memory (things you do every day without really thinking about them, such as singing a song or signing your name).
- More difficulty with “explicit” memory (remembering facts, such as the names of letters, telephone numbers or computer passwords).
- Strong visual learners (excel at memorizing sight words).
- Difficulty processing and remembering information presented orally (struggle with phonological awareness).
- Often motivated by social interaction.
- May use social interactions to avoid tasks they find challenging.
How does this translate into recommendations for instruction?
- Incorporate training in phonological awareness skills from a very early age
- Use a multi-sensory approach to teaching, including a strong visual component and manipulatives
- Provide lots of opportunity for repetition
- Model skills, strategies and expected behaviors
- Allow wait time for responses
- If needed, build in outside motivators (such as having a child track her own progress on an iPad graphing application) to compensate for low motivation or task persistence
- Be sure that when the child is practicing a new skill, you are there to provide feedback (so the skill is practiced correctly until it is automatic)
To learn more, check out this research:
Improving Memory in Children with Down Syndrome—a research update from Down Syndrome Education International. Somewhat technical but includes helpful explanations of complex processes as well as a wealth of references.
Enhancing Reading Instruction for Children with Down Syndrome –a three-year study by Dr. Christopher Lemons and colleagues, University of Pittsburgh.







This past Saturday, I attended my first B’nai Mitzvah ceremony. I was not very knowledgeable about this Jewish tradition, so I checked with a friend beforehand for advice to be sure I wouldn’t commit a terrible faux pas at this important event. She kindly sent me a task analysis on How to Behave at a Bar/Bat Mitzvah Ceremony, and I was very grateful for that because there was a lot to know. I learned that when a boy reaches the age of thirteen, he becomes a Bar Mitzvah—and accepts responsibility for himself, before friends, family and his congregation, as a member of the Jewish community. For girls, the term for this transition to adulthood is Bat Mitzvah. The ceremony I attended on Saturday posed a unique challenge as far as terminology goes because it was for triplets—two boys and a girl. Apparently, there is no term to describe that.
From my second row seat (with my reading teacher hat on) I watched in awe as each child scanned from right to left (not left to right!) and carefully pronounced the Hebrew words. I saw, from the corner of my eye, the children’s grandparents leaning slightly forward, flush with pride. Each child gave a short speech—called D’var Torah—about the personal meaning of the occasion and the parents, too, spoke to each child about the individual gifts he or she brings to their family and congregation. I was glad I followed my friend’s advice to “bring tissues, in case you cry at this very happy occasion” because I did, in fact, cry. It was joyful and moving and—I hesitate to use this word, but it fits—it was special. Because one of the triplets—Louisa—has Down syndrome. Her preparation, as you might imagine, was more complex than her brothers’. For her passage, the Hebrew characters were enlarged. The passage was not as long as her brothers’ passages. A few times in the ceremony, when the Cantor sang (and I am pretty sure that the Cantor was intended to sing alone) Louisa burst into song, notably accurate in her pronunciation. When, toward the end of the ceremony, the children were to stand to the far left and Louisa stayed firmly planted to the far right, the Rabbi and Cantor and her brothers gracefully sidestepped to the right and the ceremony continued. It was not what was planned but it was perfect. It was beautiful.
I have known Louisa since she was in kindergarten. She is a proficient reader, thanks to her parents’ unrelenting advocacy. I can only imagine the effort and persistence it took for Louisa to learn to read that Hebrew passage. But she did learn it, as well as the words to all the songs and prayers in the ceremony. There, among her family and her community, she participated fully in what I now know is one of the most important moments in a Jewish child’s life. She participated because her parents never considered that she would not become a Bat Mitzvah. She participated because the Rabbi and the Cantor and her tutor and the entire congregation provided her with the support she needed to be successful. That, to me, is the definition of community. Mazel tov, Louisa, on this important milestone in your life. And thank you for inviting me to share in your journey.
Many parents have written in to ask how they can support their child’s literacy development at home, particularly in the area of reading comprehension and vocabulary development. I turned to Connecticut reading expert, Sheryl Knapp, who graciously agreed to write a guest post on this topic. To read more about Sheryl’s work, check out her website at
One of the most effective ways to jump-start early literacy development is to read to children early (beginning by about 9 months) and often (at least 3 times a week). For toddlers and older children, interactive or shared reading is more effective at building language and literacy skills than simply reading aloud. There are many 

vantage of that nifty “Press This” button on my blog (probably created for just this sort of situation). But that didn’t work out, so here is my not-quite-short-nor-simple explanation of phonemic awareness.
I am often asked about sight word instruction for children with Down syndrome. This can be a touchy topic in the field because, years ago, most children with Down syndrome who were taught to read at all were taught using functional sight word programs. The thinking was that children with Down syndrome were not intellectually capable of learning the rules of the English language necessary to decode unknown words. “Besides,” people would often say, “kids with Down syndrome are whole-word readers.” I used to bristle at this comment; first, because I hate when people make sweeping generalizations about children (“kids with Down syndrome are happy,” “kids with Down syndrome are affectionate,” etc.) but also because I suspected that it was just another way of saying, “kids with Down syndrome can’t decode.” I spent a lot of time discouraging people from sight word instruction because I was so busy trying to spread the word that children with Down syndrome can learn the rules of language and decode unknown words.





For those of you who don’t know her,